‘Amazing baby’ is on the mend

‘Amazing baby’ is on the mend

Record-Journal


At 15 weeks pregnant, expectant parents Rudy and Rachel Fasano learned that their first child would be a girl. However, the technician doing the ultrasound noticed something was not right with the baby’s heart.

Several weeks later, a more advanced ultrasound would reveal a nightmare scenario. The baby’s heart had not completely formed.

The Fasanos were devastated by the news, of course. But being religious people, the North Haven residents put their faith in God and continued the pregnancy.

On July 20, 2017, their daughter was born. They named her Faith.

“Faith’s diagnosis is a single ventricle heart disease, hypoplastic right heart syndrome and dextrocardia. This basically means that she only developed half of her heart and it is rotated to the other side of her body,” Rachel Fasano explained. “At two days old she underwent her first open heart surgery at Boston Children’s Hospital, with two more needed by the age of 3.”

“Our daughter Faith is the strongest person we know,” Rudy Fasano stated. “ She is always smiling and laughing and is such an amazing baby. People can’t believe it when we tell them what she has gone through in her life already.”

According to the Boston Children’s Hospital website, single ventricle defects occur in five out of every 100,000 newborns. They are among the most complex of heart problems and require at least one surgery.

Faith’s case is even more rare, in that the majority of single ventricle cases affect the left side of the heart.

“Boston Children’s came up with a new idea of using the babies own umbilical vein as the shunt instead of using a man-made shunt,” Rachel said. “It had never been done before, so when we agreed, our daughter Faith became the first baby in the world to have this surgery. And so far it has been a success.”

Rachel said she was told that the ground-breaking procedure was to prevent blood clots, or rejection; a major risk when using a standard shunt.

Thankfully, Faith has responded well to the surgeries and her prognosis is good.

“Faith is the greatest gift God has given us in our lives and we believe that we are going to have a future filled with a long, healthy, happy life for our little girl,” Rudy said. “We’re looking forward to getting this next surgery behind us and being able to celebrate her 1st birthday with all our family and friends.”

While the Fasano’s insurance has covered most medical costs, the couple has had to take large amounts of time off of work to be at Boston Children’s Hospital. Meanwhile, travel, lodging and other expenses have added up.

A GoFundMe page was set up prior to Faith’s birth to support the family. The financial goal of $10,000 has been exceeded, but donations are still welcomed and appreciated. To donate, visit https://www.gofundme.com/faithsheartfund.


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